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8TuesdayDecember162014MissStacheisasophisticatedandcutelittlelady.IsntshejustpreciousIfyoubroughtherhomeshedbesohappyandgiveyoucuddles.Pleaseleaveamessageat872-5543fordetails.WESCLEANNORTHERNSALESLTD.FemaleAdultBlackandwhitemixLookingforanewhomeByMEAGANWOHLBERGHealthresearchspurredbyandforresi-dentsoftheNorthwestTerritoriescouldbegettingaboostinthenearfuturewithcollab-orativeworkunderwaybetweentheterrito-rialandAboriginalgovernmentsonformingasupportunitforpatient-orientedresearch.ThedepartmentofHealthandSocialSer-vicesHSStheTlichoGovernmentandtheInuvialuitRegionalCorp.haveteameduptoestablishaNWTSupportforPeopleandPa-tient-OrientedResearchandTrialsUnitorSUPPORTUnitforshortthroughtheCana-dianInstitutesofHealthResearchCIHR.Oneofthethingswewouldreallyliketodoasweprogressandtrytoimprovethequalityofhealthandsocialservicesandhealthcaredeliveryisinvolvingthepeoplewhoarereceivingtheserviceandspeci-callyengagingpeopleastohowcanwedothisbetterwhataretheprioritiesfromyourgovernmentsyourorganizationsandreallyworkingwiththemintheirresearchaswellastheresearchprioritiesthattheyhavesaidJimCorkalchiefclinicaladvisorforHSS.SUPPORTunitsestablishedaspartofCI-HRsStrategyforPatient-OrientedResearchareessentiallygroupsofexpertswithpolicyknowledgeandresearchresourcescapableofpursuinghealthresearchfuelledbythepatientsthemselvestheircommunitiesorFirstNations.Aftersupportingtheresearchitselftheunitsalsoleadandfacilitatedecision-mak-ingwithinthehealthsystemtoensurebestpracticesarebeingimplementedattheser-vicelevel.Insteadofitbeingacompletelytop-downapproachwerelookingathowcanwemakethisamorebottom-upapproachtogettoareasthatpeopleareveryveryinterestedinforthehealthoftheircommunitiesCorkalsaid.Theteamwasrecentlysuccessfulinsecur-ingsomefundingfromCIHRtobeginworkonsettinguptheunit.Nowinitsformativestagesasmallsteeringcommitteehasbeensetuptoworkonabusinessplantogetitupandrunningbasedoninputbeinggath-eredfromthecommunitiesandAboriginalgovernments.WeareintheprocessofstructuringthesupportunitandwhatitwouldlooklikehereifwediddevelopitintheterritoriesCorkalsaid.WereverymuchinwhatIcalltheformativestages.Wehavetheconceptwerelookingforappropriatepartnersandhowwestructurethiswillbeverymuchuptoourpartnersandwhetherornotitsmeet-ingtheirgoalsandourgoals.ThoughtheinitiativeisinitsearlystagesCorkalsaidalikelyfocusfortheresearchwillbeonprimarycaredeliveryaswellasAboriginalhealth.SpecicallyinourenvironmentIthinktheNWTisuniquelypositionedforresearchrelatedtoAboriginalhealthaswellasre-searcharoundwhatwecallculturalcapa-bilitiesorensuringthatservicedeliveryisdoneinaculturallysafeawareandrelevantfashionCorkalsaid.Hesaidtheunitwillcooperatewithbutnotduplicateotherbottom-upinitiativeswithinthegovernmentsuchasthecom-munitywellnessplanningbeingundertakenbythedepartmentsAboriginalHealthandWellnessdivision.TheNWTteamisnowworkingondevel-opingabusinessplanthatwillpresentitsprioritiesgovernanceresourcingandbud-getrequirements.AccordingtoCIHRSUPPORTUnits-housedinotherjurisdictionsacrossCanada-require2-10millionperyeareachtorun.CIHRmatchesanynancialcommitmentsmadebythejurisdictions.Corkalsaidthereisnosettimelineastowhenthebusinessplanningprocesswillbecomplete.Patient-centeredresearchinitiativegetssupportinNWTHEALTHWELLNESSRESEARCHMotherawardedforbringingTourettesawarenessNorthByDALICARMICHAELAmotherinFortSmithhasbeenawardedforhereffortsinbringingattentiontoTo-uretteSyndromeintheterritorybyorga-nizingawarenessandfundraisingeventsinhercommunity.TheTouretteSyndromeFoundationofCan-adahonouredKimBennettwiththeMaureenCavanaughPublicAwarenessAwardforout-standingachievementinpromotingTouretteSyndromeawarenessaftershebroughttheorganizationsagshipeventtheve-kilo-metreTrekforTourettetotheNWT-thefurthestnorthithaseverbeenheld.OriginallyBennettsoldestsonCaydenwasmisdiagnosedwithAttentionDecitHyper-activityDisorder.Watchinghersonsticsgetprogressivelyworseshepressedhisdoctorstore-evaluatehissymptoms.WhenCaydenwasnallydiagnosedwithTouretteSyndromeseveralyearsagohispediatricianwasonthebrinkofretirement.LeftalonetonavigatethehealthsystemwhileprocessingtherealitiesofhersituationBennettfeltisolatedandconfused.Afterjumpingthroughobstacleafterob-stacleBennettwasabletondaneurologistinYellowknifetohelpherfamily.Thismadethingseasierwhenafewyearslaterhersec-ondsonKaiwasgiventhesamediagnosis.ItwasthosememoriesoffrustrationandhelplessnessthatdroveBennetttobringtheTrektohertowntobuildonpreviousaware-nesscampaignsshehadconductedinhersonsclassrooms.Whenwerstfoundoutweknewnoth-ingaboutitBennettsaid.Wejustwentoffofwhatweseeinmoviesandstuff-swearingandbigtics-andwevelearnedsomuch.ThemaintreatmentforTourettesiseducatingpeo-plearoundthembecausethereisnocure.Evenwithmedicationstheynoticeablyhaveissues.WithtwoeventsheldinMarch2014in-cludingakidsTrekforTouretteSyndromeattheJosephBurrTyrrellElementarySchoolandacommunity-wideeventBennettwasabletoreachoutandandsharethechallengeshersonsfaceonadailybasis.Shealsoraised7300withdonationsandpledgesfromin-dividualsandorganizationsintown.EverydaychallengesKainineandCayden11bothhavemotorticsthatcauserepetitivefacialneckandshoul-derspasmsastheirmusclestenseinvoluntarily.InthepastCaydenhassufferedfromsevererashesandexhaustionasaresultofhisticsandhasevenbeenbroughtintotheemergencyroomtobemedicallyrelievedwithmusclerelaxersduringsomeofhisworseoutbursts.Kaihasticsthatowthroughtherestofhisbodyforcinghishandstoopenandcloseandhislegstokicksporadically.Healsohasvocalticsthatcausehimtohaveloudout-burstsandsometimesheunwillinglyiesintowickedragesBennettsaid.Bothstudentshaveindividualizedlessonplans.Theyaregiventhesamelevelofworkastheirpeershowevertheyaregivenmoretimetocompletetheirworkastheirpincermotorskills-themusclemovementsthatallowthemtoholdpencils-areaffectedbytheirtics.Evenwiththeirconditiontheboysleadfairlyregularlivesandsharethesameinterestsastheirfriends.TheylovewatchingStarWarsplayingwithLegoandexploringtheoutdoors.YearsagoBennettonceagainnavigatedthesystem-thistimelookingintosocialservices-tondhelpintheformofarespiteworker.AftergoingthroughseveralaidesthefamilyconnectedwithLyndaThickettwhohastakentheboysonoutingsseveraltimesaweekforthelastfouryears.TheserviceisdeliveredbytheNWTDisabilitiesCouncilandiscoveredbytheGNWT.HerpresencebenetsthewholefamilygivingBennetttimetorestinbetweenhertwojobsandtheboystimetoexpendtheirenergy.ItsprettyisolatedhereBennettsaid.Peo-plewithdiabeteshavegroupsessionstogototheyhavethingsthatareputonforthembuttheresnothinghereforTourettesandthereisntreallyanyhelp.WithoutLyndaIdontevenwanttoknowhowcrazyinsaneitwouldbeeventhoughIlovemylittlemonkeys.Thicketttakestheboysoutonhikesinthesummersandallyearlongshebringsthemtotheanimalsheltertoeatpeanutbutterandjamsandwichessiphotchocolateandofcourseplaywiththeanimals.Oneoftheirfavouriteactivitiesthoughisgoingtopublicswimsatthereccentreoneofthefewnon-medicinaltreatmentsforCaydenssymptoms.WhenhesinthewaterandisfocusedonswimminghehasveryfewticsThick-ettsaid.Itsreallyamazing.Wetrytodoitonceortwiceaweek.Forthe2015TrekBennetthopestogetmorepeopleinvolvedfromaroundtheterritory.MydreamwouldbeforthemtomeetotherkidswithTourettesshesaid.WhenCaydenwasyoungerheaskedmeAmItheonlyoneintheworldlikethisThisistheirworldtheyvenevermetanybodyelsewithTourettes.CaydenBennettKimBennettKaiBennettandtheirrespiteworkerLyndaThickettcontinuouslyworktogethertoovercomechallengesthatcomewiththeboysTourretteSyndrome.PhotoDaliCarmichaelHEALTHWELLNESSAWARENESS